Blogs

FamilyConnect hosts a variety of blogs written by parents who are raising children who are blind or visually impaired. Names on some blogs may have been changed to protect individuals' privacy.


FamilyConnect: A Parent's Voice

This blog is for you—parents of children with visual impairments. We talk about what it's like to be a parent, how to advocate for your child, what new resources we've found, and much more. FamilyConnect also periodically invites experts in all different aspects of raising a visually impaired child to make themselves available to answer your questions.

  • Holiday Travel Tips for Families with Visually Impaired Children and Teens
    by Shannon Carollo on 12/7/2016

    Heading anywhere for the holidays? This year we’re opting to stay home and soak up two weeks of minimal commitments and maximum relaxation. I cannot wait to regroup and unwind. If you, on the other hand, are opting to visit family, sightsee, or vacation, you brave soul, and you aim to experience respite on your adventure…not to mention make the most (educationally) of your experience…read on. I’ve compiled a list of travel suggestions published on AFB and WonderBaby in years past. The only suggestions missing are yours! So, gather a few for yourself, and leave a few for others in the comment

  • Understanding CHARGE Syndrome: Raising My Child Who Is Deaf-Blind
    by Amanda Bowdoin on 12/5/2016

    Editor's Note: Last week, Amanda Bowdoin shared the story of the birth of her son, JD, who is deaf-blind with CHARGE Syndrome. Today in part two, Amanda shares the joy and fear of raising her child. Understanding CHARGE Syndrome: Raising My Son, JD JD spent most of his early years surrounded by nurses, therapists, and doctors. I decided when the twins were 3 years old to go into the program at Stephen F. Austin State University for Visual Impairment. At this time, JD was starting to wear glasses. Because he

  • Understanding CHARGE Syndrome: The Birth of My Son Who Is Deaf-Blind
    by Amanda Bowdoin on 11/30/2016

    Editor's Note: Over the past several weeks, Amanda Bowdoin has shared stories about raising her son, JD, who is deaf-blind with CHARGE Syndrome. She showed us how anything is possible for JD and how he is bound by no limits. Today, she shares a special story about the birth of her twins, JD and Olivia. This is part one of a two-part series. Understanding CHARGE Syndrome


Raising a Child Who is Blind and...

I am the mother of three and my middle child, Eddie, is officially the "Special Needs Child." Here is my blog to share the joy and pain of having such a unique child.

  • Autism Awareness Month: The Child Versus the Label
    by Emily Coleman on 4/4/2016

    Many children who are visually impaired are also diagnosed with autism, including my son Eddie. For Eddie, it was simply because his blindness alone could not explain his developmental delays...and we needed more answers. When he was given the “label” of autism at five, it seemed the best explanation for concerns that could not be explained otherwise. After the diagnosis, we were met with questions and concerns from educators in the field of blindness. Is he really autistic? Are you sure it isn't just

  • The Understanding of a Sibling
    by Emily Coleman on 12/31/2015

    The other morning I woke up with my 7-year-old in bed with me (which happens sometimes) and we were listening to Eddie down the hall. He typically wakes up and immediately turns on his bedside radio, which is how we know he’s up. As we lay there quietly, my daughter started peppering me with questions about her brother who is blind. CC asked, “Mom, why does Eddie like to listen to the radio?” I replied, “It’s a little bit like when you binge watch “Monsters High” on Netflix. He enjoys listening to music, and he can do it all day long.” CC said, “But he doesn’t listen to just music,

  • Quality Eddie Time
    by Emily Coleman on 11/25/2015

    Eddie with a toy bird in a cage While Eddie’s sisters were attending a volleyball camp recently, Eddie and I had a rare opportunity to spend a few hours alone. Although I had plenty of errands to run, and things to do, I decided to take it slow and operate on Eddie time. We began by visiting my sister and her fiancé and then had lunch with James, Eddie’s Dad. Eddie was in a great mood, enjoying being the center of attention for a change. (His younger sister usually steals the show.) After lunch, we still had two hours to spare. I gave him many options and our conversation went a little like this: “Do you want to go to the


Other Blogs From the American Foundation for the Blind


AFB Blog

The American Foundation for the Blind is a national organization expanding possibilities for people with vision loss. AFB experts can be found on Capitol Hill ensuring children have the educational materials they need to learn; in board rooms working with technology companies to ensure that their products are fully accessible; and at conferences ensuring professionals who work with people with vision loss have access to the latest research and information. Through our online resources and information center we communicate directly with people experiencing vision loss, and their families, to give them the resources they need to maintain an independent lifestyle. Follow AFB's blog to learn more about our activities.


CareerConnect Blog

AFB CareerConnect® is an employment information resource developed by the American Foundation for the Blind for job seekers who are blind or visually impaired. The CareerConnect Blog focuses on employment issues for people who are blind or visually impaired, as well as sharing stories from mentors and other blind people who have found career success.


Visually Impaired: Now What?

Formerly known as the "Peer Perspectives Blog," we have renamed the blog to reflect the purpose more accurately. The posts are written by our team of peer advisors, many of whom are professionals in the field who are blind or visually impaired. The blog features solutions for living with visual impairment resulting from eye conditions such as macular degeneration, glaucoma, diabetic retinopathy, and retinitis pigmentosa. It includes posts about living independently, getting around, low vision, technology, cooking, and helpful products.