by Emily Coleman
I’m going to share a little secret that is often hidden by my mostly positive writing; raising a child like Eddie is pretty hard. Multiple times a day an overwhelming feeling of anxiety starts to build, and I do my best to block it, but it is always there under the surface. I could easily focus on the struggles he faces every day…and the fear that I can’t help him. Honestly, sometimes I can’t help but focus on that…but not today. Today, I’m focusing on being thankful.
I’m thankful for his ridiculously contagious laughter, which comes out of nowhere, and makes us wonder if he’s possessed.
I’m thankful for his hugs, and air kisses, because he’s never quite patient enough to make it all the way to my cheek.
I’m thankful for his willingness to use a white cane, even if he hasn’t quite figured out its intended purpose.
I’m thankful for the dedicated staff at his school, and their willingness to work hard for Eddie, when I know I’m not always a picnic…and neither is Eddie.
I’m thankful for a certain occupational therapy “guru” who has just agreed to evaluate my son, even though she has no time, and owes us nothing.
I’m thankful for a foundation in our area, which awarded Eddie a grant, so we don’t have to deny him what he needs.
I’m thankful for my husband, who is the best father I have ever met.
I'm thankful for my daughters, who surprise, amaze, and entertain me every day.
I’m thankful for having so much family that we simply can’t be with them all on Thanksgiving…and I’m thankful that they all want us there, and accept Eddie for who he is.
Finally, this Thanksgiving, I’m most thankful for having known my Grandfather-in-law, who we unexpectedly lost last weekend. He was without a doubt the biggest fan of this blog, even though he never got on the internet. Family printed off copies of my postings, and he faithfully stowed them chronologically in a binder and referred to it as his “book.”
He often spoke about Eddie, and knew Eddie really well because of reading the “book.” He had a greater understanding of my family, because he always took the time to read…ask questions…and simply care. He was a generous, loving man…and thanks to him, so is Eddie’s dad.
So, on this day, the only overwhelming anxiety I feel, is that I won’t be sending a copy of this article to him…and his “book” will remain the same. But as with all anxiety I face, I’m not going to focus on that, because he wouldn’t want me to feel that way.
In honor of him, I’m going to instead continue to focus on being thankful. Thankful for Eddie, for our family, for support, and for a man that I’ll continue to think about every time I write…and that I know is still reading every word.
If you have a child with a visual impairment in your family...please comment below. What are you thankful for...how do you keep being thankful?
Re: Being ThankfulPosted by Habibi on 11/28/2013 at 2:15 AM
Manythanks to u for sharing and let me think what i am thankful for this morning!
I am thankful for being Moha's Mom!
I am thankful to be myself to research and read all the time to understand what his Aniridia, hypospadia unescended testicles mean!
i am thankful to have my family my mom my bro to support me in all the ways! specially my Mom she still take care of my baby because i have to work!
I am thankful to mu husband
I am thankful to be aware of what my baby is into and able to find doctors for his different issues, and finally he is going to to have his first surgery in coming December for his undeseneded testicles and hypospadia (if there is anyone out there for this matter i need ur advice please)!
Many thanks one more time for leting me to think what i am thankful for!
Re: Being ThankfulPosted by Susan Harper on 11/28/2013 at 8:28 AM
So Sorry for your loss. I lost my mother-in-law and my best friend and cheerleader 4 years ago and the hole she left is still huge. I am so thankful that I had a wonderful role model and support in our large and unwieldy (at times) family. She never criticized, just listened. I am so thankful that I met you and your family and all the many others who walk this journey in tandem, for their support! Happy Thanksgiving Day! Blessings to you and your family and may you find peace in the coming days.
Re: Being ThankfulPosted by LiL_NyK on 11/28/2013 at 8:49 PM
Emily as you may know I adore your writings. Im sorry for your loss, there are people in this world that touch hearts more than words can express. Dont you love the out of nowhere laughter its the best. My nyk does that alot, I love ur quote on how it makes you guys wonder if he is possessed lol:)
I am thankful for this.website and remembering my password after all these years I am thankful for people who are in the similar shoes. I am very thankful for my amazing hubby, he is the best father that Nyk could ever ask for. I am thankful for Nyks amazing voice in the mornings as I.call him (my morning rooster) favorite part of the day. I am very thankful for my beautiful amazing daughter who shows so much compassion to anyone. I am tha.kful for my gradmother who.listens to me.vent like a mad lady when I just need to let it out, and never judges or critizes me. Just supports me and my family. One last thankful for isnmy best friend in.the.who world tiffany, she still.makes.the old me.shine when I am feeling at my lowest.
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