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Host of the Albinism Forum
National Organization for Albinism and Hypopigmentation
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About National Organization for Albinism and Hypopigmentation
NOAH is a U.S.-based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them. NOAH is operated by its members on a volunteer basis and is funded primarily by dues and contributions of its members. NOAH has also received grants from foundations and organizations for specific projects. NOAH's objectives are: - Provides information and support regarding albinism and related conditions.
- Promotes public and professional education about these conditions
- Encourages research and funding that will lead to improved diagnosis and management of albinism.
- Provides networking for those with special interests related to albinism such as minority groups and Hermansky-Pudlak Syndrome.
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Services
Community Outreach Programs
Holds a biannual family summer camp for children with albinism and their families.
Holds a biannual national conference for the albinism community.
Fee: Registration fees set per event.
Information and Referral
NOAH provides information and support for its members by:
- Sponsoring workshops and conferences on albinism
- Publishing a quarterly magazine, Albinism InSight
- Publishing information bulletins on topics specific to living with albinism
- Providing a network of local chapters and contact people
- Providing a web site that has information about albinism and bulletin boards where people can share experiences
- Spreading knowledge about albinism and working to improve attitudes towards those with the condition through television appearances, newspaper articles, information packets for libraries, and outreach to professionals
- Networking with support groups for people with albinism in other countries, and promoting development of albinism support groups throughout the world through participation in the Albinism World Alliance.
Summer/Day Camps and After-school Programs
The NOAH's Family Summer Camp is offered biannually in the summer of odd numbered years.
Support Groups
NOAH works to facilitate connections among individuals in the albinism community. Call or e-mail for more information.
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National Organization for Albinism and Hypopigmentation, is this page missing one of your services, events, programs, or announcements? Update your information for free.
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