FamilyConnect™

For parents of children with visual impairments

Message Boards

Welcome to the FamilyConnect Community!

Share your ideas and experiences using our message boards. If you are not yet a registered member, you can sign up for free. Anyone can read the message boards, but only registered users can post questions or replies.

• After the Diagnosis - 15 subjects
  If you've just learned that your child is visually impaired, this is probably a difficult time for you, your family, and your friends. Connect with other parents who have been there, or are dealing with the news themselves.
  
• Leber's Congenital Amaurosis Forum - 23 subjects  Hosted by: 
  Connect with other families whose children have Leber's Congenital Amaurosis, and share your own experiences.
  
• Optic Nerve Hypoplasia Forum (also known as Septo-Optic Dysplasia and De Morsier's Syndrome) - 53 subjects
  Connect with other families whose children have optic nerve hypoplasia, and share your own experiences.
  
• Glaucoma Forum - 9 subjects  Hosted by: 
  Connect with other families whose children have glaucoma, and share your own experiences.
  
• Deaf-Blindness Forum - 7 subjects  Hosted by: 
  Connect with other families whose children are deaf-blind, and share your own experiences.
  
• Achromatopsia Forum - 18 subjects
  Connect with other families whose children have achromatopsia, and share your own experiences.
  
• Anophthalmia Forum - 8 subjects
  Connect with other families whose children have anophthalmia, and share your own experiences.
  
• Amblyopia Forum - 4 subjects
  Connect with other families whose children have amblyopia, and share your own experiences.
  
• Aniridia Forum - 1 subject
  Connect with other families whose children have aniridia, and share your own experiences.
  
• Autism Spectrum Disorders Forum - 9 subjects
  Connect with other families whose children have autism spectrum disorders, and share your own experiences.
  
• Norrie Disease Forum - 4 subjects
  Connect with other families whose children have norrie disease, and share your own experiences.
  
• Multiple Disabilities Forum - 20 subjects
  Connect with other families whose children have multiple disabilities, and share your own experiences.
  
• Uveitis Forum - 1 subject
  Connect with other families whose children have uveitis, and share your own experiences.
  
• Juvenile Retinoschisis Forum - 2 subjects
  Connect with other families whose children have juvenile retinoschisis, and share your own experiences.
  
• Cataracts Forum - 7 subjects
  Connect with other families whose children have cataracts, and share your own experiences.
  
• Familial Exudative Vitreoretinopathy (FEVR) Forum - 1 subject
  Connect with other families whose children have familial exudative vitreoretinopathy (FEVR), and share your own experiences.
  
• Hot Topics Forum - 1 subject
  Families face many issues as they raise a child in today's world. The FamilyConnect team looks forward to hearing your thoughts.
  
• Cortical Visual Impairment Forum - 33 subjects  Hosted by: 
  Connect with other families whose children have cortical visual impairment, and share your own experiences.
  
• Parents of Infants and Toddlers Forum - 30 subjects
  Connect with other parents of infants and toddlers with visual impairments.
  
• Parents of Preschoolers Forum - 13 subjects
  Connect with other parents of preschoolers with visual impairments.
  
• Parents of Grade Schoolers Forum - 34 subjects
  Connect with other parents of grade schoolers with visual impairments.
  
• Parents of Teenagers Forum - 21 subjects
  Connect with other parents of teenagers with visual impairments.
  
• Education Forum - 15 subjects
  IFSPs, IEPs, assessments, accommodations—making sure that your child is getting an appropriate education can feel like a full-time job. Find answers, support, and help from other parents here.
  
• Technology Forum - 15 subjects
  Having a child with a visual impairment means being introduced to a whole new world of assistive technology. Share your recommendations and experiences here.
  
• Albinism Forum - 4 subjects  Hosted by: 
  Connect with other families whose children have albinism, and share your own experiences.
  
• Coloboma Forum - 2 subjects
  Connect with other families who have children whose vision is impaired by coloboma.
  
• De Morsier's Syndrome Forum - 0 subjects
  Connect with other families whose children have De Morsier's Syndrome, and share your own experiences.
  
• Laurence-Moon-Bardet-Biedl Syndrome Forum - 2 subjects
  Connect with other families whose children have Laurence-Moon-Bardet-Biedl Syndrome, and share your own experiences.
  
• Low Vision Forum - 5 subjects
  Connect with other families whose children have low vision, and share your own experiences.
  
• Macular Degeneration Forum - 2 subjects
  Connect with other families whose children have macular degeneration, and share your own experiences.
  
• Marfan Syndrome Forum - 2 subjects
  Connect with other families whose children have Marfan syndrome, and share your own experiences.
  
• Microphthalmia Forum - 2 subjects
  Connect with other families whose children have microphthalmia, and share your own experiences.
  
• Nystagmus Forum - 15 subjects
  Connect with other families whose children have nystagmus, and share your own experiences.
  
• Optic Nerve Atrophy Forum - 7 subjects
  Connect with other families whose children have optic nerve atrophy, and share your own experiences.
  
• Retinitis Pigmentosa Forum - 9 subjects
  Connect with other families whose children have retinitis pigmentosa, and share your own experiences.
  
• Retinoblastoma Forum - 2 subjects
  Connect with other families whose children have retinoblastoma, and share your own experiences.
  
• Retinopathy of Prematurity Forum - 12 subjects
  Connect with other families whose children have retinopathy of prematurity, and share your own experiences.
  
• Stargardt's Disease Forum - 25 subjects
  Connect with other families whose children have Stargardt's Disease, and share your own experiences.