New as well
mamarice on 6/9/2008 5:34:36 PM.
Hi just wanted to let you know we are also new to this website and new to Achromatopsia. We are foster parents and have a little girl 8mo old with A. We are hoping to adopt her and her sister. Process takes a long time. Anyway she has just gotten a vision therapist. He is not familiar with A but I know he will do his best with finding information. What advice do any of you have for me and my family in regards to an infant with A? Do you all remember when your little ones were little and what toys you used or what things helped you manage? We seem to be doing okay. It is hard to know what she does see and not see. I know the older she gets the more distinguishable all will be. Thanks so much.
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