My 16 week old has ONH
Watson03 on 9/7/2009 12:21:19 AM.
I was just told 5 days ago my sweet baby boy has Bilateral optic nerve hypoplasia. Having to put my shock and grief aside I quickly got him in for the suggested MRI. We have recieved the preliminary results stating the he does have part of his midline in the brain underdeveloped. His pituitary appears to be normal. I am in a daze and am still processing with my friends and family. I am falling apart but try to be there for my baby and my husband. I just thought I would see if there is anyone with advice or who can relate to my story. How do you carry on with life. Do you continue with work and things as if they are normal or do I quit work to be with my child. So many questions, so little answers.
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