2 year old just diagnosed with RP
helpmesee on 10/16/2009 10:35:04 PM.
My 2 year old daughter was just diagnosed with retinitis punctata albescens yesterday. We are going to be doing an ERG soon. I knew in my gut that she had this (or something like it) since she was about 6 months old. She is completely night blind (I think, the test will tell us) but she cannot see anything from twilight on. She is also VERY farsighted. Her glasses her extremely thick.
I need help. We have bought her flashlight after flashlight for use at night but none of them are strong enough for her. She still trips and lands into things, not just little things, things like a chair or a bed.
Also, what do we do for her future? Should she learn braille? Her opthamologist suggested a vision therapist. She seems fine now during the day but I know things will progress.
How can I help her make the most out of life with this??
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