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For parents of children with visual impairments

Optic Nerve Hypoplasia Forum (also known as Septo-Optic Dysplasia and De Morsier's Syndrome)

Connect with other families whose children have optic nerve hypoplasia, and share your own experiences.

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• Schools in North Carolina for child with onh and atypical autism - 3 replies
  Posted by rebel
  
• anybody? - 0 replies
  Posted by Blind girl
  
• summer camp - 0 replies
  Posted by Blind girl
  
• teen conect! - 0 replies
  Posted by Blind girl
  
• help!!! - 1 reply
  Posted by kbugsmommy 6411
  
• help with the notifications. - 3 replies
  Posted by nanakru5509
  
• pen pals - 0 replies
  Posted by Blind girl
  
• OHN & Crawling/Sitting - 3 replies
  Posted by ToriMatejovsky
  
• Behavior - 7 replies
  Posted by peckitas1
  
• Strabismus Surgery - 1 reply
  Posted by sjr243
  
• Technology - 0 replies
  Posted by peckitas1
  
• Stimming - 4 replies
  Posted by mommyof3
  
• my 11 year old won't eat food - 3 replies
  Posted by Jessican260
  
• Gifts-Toys for ONH - 1 reply
  Posted by Jessican260
  
• Quick Question - 7 replies
  Posted by sjr243
  
• my 8 year old son with ONH - 1 reply
  Posted by tantan
  
• Does a child with ONH/SOD develop speech? Please help!!! - 8 replies
  Posted by Kherlen
  
• sleeps too mcuh - 6 replies
  Posted by NUARETT
  
• ONH, nystagmus, and schizencephaly - 4 replies
  Posted by angelam1988
  
• help? - 9 replies
  Posted by austins.mom
  
• losing baby teeth - 2 replies
  Posted by anna13
  
• HELP!!!!!! - 5 replies
  Posted by ajay318
  
• Diagnosing ONH? - 2 replies
  Posted by BlessedMommy107
  
• The Facts About Thyroid Disease - 1 reply
  Posted by victoriaD
  
• sod w/ senorineural hearing loss? - 2 replies
  Posted by dkotoski
  
• SLEEP! or lack there of - 6 replies
  Posted by dkotoski
  
• Need Tips on Riding a Bike - 4 replies
  Posted by JoshyPJ
  
• children after sod??!!! HELP - 5 replies
  Posted by nmyers
  
• children after sod??!!! HELP - 1 reply
  Posted by nmyers
  
• What does life look like raising a child with ONH? - 13 replies
  Posted by zbargainmama
  
• Frustrating sleep Habit of 3 yr old with ONH - 8 replies
  Posted by nightriderbrat
  
• Having a hard time! - 2 replies
  Posted by Nyksmom
  
• New to all of this... - 5 replies
  Posted by Mellybean214
  
• OUR KIDS CAN PLAY SPORTS - 3 replies
  Posted by Angel_tex
  
• China - 2 replies
  Posted by AshleyDunn
  
• Potty Training - 9 replies
  Posted by AshleyDunn
  
• ONH and poor sleep? - 8 replies
  Posted by SJR829
  
• Any Feeding Therapists willing to give a little advice? - 2 replies
  Posted by mommyof3
  
• ONH with hearing loss - 1 reply
  Posted by Gogi
  
• ONH with hearing los - 1 reply
  Posted by Gogi
  
• Boredom - 3 replies
  Posted by AshleyDunn
  
• My son is 1years old and was born with Optic Nerve Hypoplasia - 10 replies
  Posted by Mikael's&Nevaeh'sMommy
  
• BE HAPPY - 1 reply
  Posted by blindfolded
  
• HELP!! We are having issues even the doctors can't seem to figure out. - 10 replies
  Posted by gottahaveFaith
  
• HELP!! We are having issues even the doctors can't seem to figure out. - 1 reply
  Posted by gottahaveFaith
  
• scared,and overwhelmed - 13 replies
  Posted by bellasmommy
  
• Feeling alone and unsure - 16 replies
  Posted by cnielson76
  
• Nyks 4th birthday party - 3 replies
  Posted by LiL_NyK
  
• Nyks 4th birthday party - 3 replies
  Posted by LiL_NyK
  
• Photograph! - 3 replies
  Posted by Grammie_Elia
  
• Child won't chew food - 4 replies
  Posted by mommyof3
  
• Dilated Pupils - 3 replies
  Posted by mommyof3
  
• Braille - 4 replies
  Posted by ljelia
  
• Just diagnosed with ONH after eye test - 3 replies
  Posted by Bubbabeau
  
• what should I do when Teacher consultant of the visually impaired grabs my childs cane - 6 replies
  Posted by the-keelers
  
• ONH - 3 replies
  Posted by nanakru5509
  
• Anyone who has a child with ONH still with vision. - 6 replies
  Posted by mommy2zayden
  
• some usefull information - 14 replies
  Posted by Chlorine17
  
• New Here and looking for help.. - 2 replies
  Posted by TJenn
  
• Parents of children with ONH in southern California - 1 reply
  Posted by jluvjluvc
  
• questions for moms of children with no vision - 7 replies
  Posted by Morganewilliams
  
• Scared and Confused??? - 17 replies
  Posted by Arabella's Mommy
  
• Surgery to center Null Point - 1 reply
  Posted by maybelle678
  
• Looking To Connect - 4 replies
  Posted by Brittaya
  
• Growth hormone deficiency and side effects - 2 replies
  Posted by peckitas1
  
• 8yr old with onh/dev. delay/won't eat/behavior issues - 5 replies
  Posted by jessican
  
• NEW TO SITE questions/concerns - 1 reply
  Posted by meli1986
  
• Pre teen or teenage girl with S.O.D. - 3 replies
  Posted by hallnat22
  
• Help - 12 replies
  Posted by hallnat22
  
• Diagnosis questions-long- Trying again! - 4 replies
  Posted by abiller
  
• Diagnosis questions-long - 1 reply
  Posted by abiller
  
• A few questions: large infant w/ ONH & pediatrician concerns - 7 replies
  Posted by srb3703
  
• Optic nerve hypoplasia and the military - 1 reply
  Posted by twister
  
• son with ONH SOD vision issues - 5 replies
  Posted by Hudsonsmom
  
• ONH and education - 7 replies
  Posted by badcody
  
• ONH with normal MRI??? - 9 replies
  Posted by lmorgan4523
  
• Learning Tools for ONH - 5 replies
  Posted by quatrained
  
• Some advice, please? - 10 replies
  Posted by stacemcace
  
• So confused - 5 replies
  Posted by LiL_NyK
  
• Do i have the right to decide? - 11 replies
  Posted by LiL_NyK
  
• 5 yr old with ONH now has thryoid problem - 10 replies
  Posted by nanakru5509
  
• Hello my name is Tanekqua and I am new to this site! - 4 replies
  Posted by Tanekqua
  
• When I was 2 I was diagnosed with Optic Nerve Hypoplasia at age 2 , at age 9 SOD - 3 replies
  Posted by Sarahgirl
  
• My 16 week old has ONH - 3 replies
  Posted by Watson03
  
• My Nephew has just been diagnosed with ONH - 3 replies
  Posted by erica3670
  
• Mother of a little girl with Optic Nerve Hypoplasia in need of guidence! - 5 replies
  Posted by Miss Tiffany
  
• Hi, I'm new here - 5 replies
  Posted by Brittaya
  
• Crawling - 7 replies
  Posted by jacks grandma
  
• SOD/Fresno Ca - 9 replies
  Posted by evansmomma
  
• find a pediatric ophthamologist that specializes in ONH - 4 replies
  Posted by Masonsmom
  
• SOD featured on the show Mystery diagnosis on TLC - 2 replies
  Posted by HollandsMom
  
• behaviors of ONH - 5 replies
  Posted by rosie3
  
• potty training - 6 replies
  Posted by jamieh
  
• Sleep!!! - 20 replies
  Posted by kirtissa
  
• Monkey boy loves his feet!! - 7 replies
  Posted by kirtissa
  
• ONH/SOD FAMILIES IN THE NYC AREA - 4 replies
  Posted by peckitas1
  
• Just Beginning... - 10 replies
  Posted by Carson's mom
  
• anyone else experience this? - 10 replies
  Posted by rachelkidd
  
• Please help, me figure this out! - 10 replies
  Posted by queensoppe
  
• Needs Someone to talk to! :( - 15 replies
  Posted by LiL_NyK
  
• Completely Lost!!! - 15 replies
  Posted by ebonymonique1
  
• Braille Reading Pals - 3 replies
  Posted by nanakru5509
  
• I need help - 10 replies
  Posted by MommyNBA33
  
• Home features for the blind - 3 replies
  Posted by RinneyAnn
  
• Teacher for V I ? - 5 replies
  Posted by nanakru5509
  
• New to de Morsier's and Group - 4 replies
  Posted by Delaney
  
• glasses/goggles - 11 replies
  Posted by plulute
  
• help - 2 replies
  Posted by rachelkidd
  
• please read - 2 replies
  Posted by hammielover
  
• yahoo groups information - 7 replies
  Posted by mommy2specialangel
  
• Does a 4 year old ONH/ Nystagmus need Psychologist testing ? - 3 replies
  Posted by nanakru5509
  
• Where do i go from here? - 13 replies
  Posted by wondurful
  
• VI 4 year old preschool learning braille? - 3 replies
  Posted by nanakru5509
  
• Living through this condition - 4 replies
  Posted by Nana54
  
• Tough Times, Happily Surviving. - 4 replies
  Posted by Ty Man
  
• ONH and oh is it fun fun fun - 12 replies
  Posted by onh2004sunnyboy
  
• reply to9 kristin of springfield oregon - 7 replies
  Posted by shirleyw
  
• New to ONH - 10 replies
  Posted by mamamomgrandma
  
• Dealing with multiple disabilities - 1 reply
  Posted by SLIM3000
  
• Biting - 8 replies
  Posted by RinneyAnn
  
• Stem Cells - 55 replies
  Posted by RinneyAnn
  
• Help! - 7 replies
  Posted by RinneyAnn
  
• ayden - 26 replies
  Posted by aydensmommy
  
• ONH/Septo Optic Dysplasia - 46 replies
  Posted by cbgrammie04
  
• Diagnosis - 9 replies
  Posted by RinneyAnn
  

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