Blogs

FamilyConnect hosts a variety of blogs written by parents who are raising children who are blind or visually impaired. Names on some blogs may have been changed to protect individuals' privacy.


FamilyConnect: A Parent's Voice

This blog is for you—parents of children with visual impairments. We talk about what it's like to be a parent, how to advocate for your child, what new resources we've found, and much more. FamilyConnect also periodically invites experts in all different aspects of raising a visually impaired child to make themselves available to answer your questions.

  • Understanding and Advocating for the Expanded Core Curriculum
    by Shannon Carollo on 7/30/2018

    Imagine with me you’re looking into the future of your son (or daughter) who is blind or visually impaired. He’s in his early twenties and nearing the completion of his first year of employment. It isn’t his dream job, but hey, one must start somewhere. He lives downtown in an up-and-coming area, about two blocks from a bus stop, and shares a home with two friends. You had been sweating about his life post-nest, but he’s actually doing quite well. When we look toward the future, it’s easy to see that while math and the rest of the core curriculum are necessities, equally so (and arguably more so) are the areas of the expanded core curriculum, which teach children who are

  • Equipping Children Who Are Blind or Visually Impaired with Outdoor Activity Skills
    by Shannon Carollo on 4/23/2018

    Hearing shrieks of laughter and commotion outside, Jane peeked through the blinds. Ah, the neighborhood kids are playing soccer on the Biggs’ front yard. New to the street, she didn’t yet know the ages of all the children, but they looked to be between five and eight years old, similar in age to her Theo. She wondered, as she had many times before, if Theo would fit in with his peers who had typical vision. If only he could play soccer, this would be the perfect opportunity to foster friendship. As you may already know, Theo and others who are blind or visually impaired can indeed play soccer or other outdoor activities. With thoughtful preparation of accessible equipment and providing instruction in the movements, rules, and nuances of games, outdoor activities can be

  • Empowered to Work with Your Visually Impaired Child’s Medical Professionals
    by Shannon Carollo on 4/16/2018

    You + your child’s ophthalmologist + the pediatrician + any necessary therapists + medical specialists who manage any chronic or acute problems = your child’s robust medical professional team. You are a key member. Yet, it isn’t uncommon for parents to feel void of expertise and, therefore, to take a passive role or back seat in medical evaluations and interventions. I’m here to remind you that your child and his or her medical personnel need you, whether or not the need is acknowledged, as you are the expert on your child and the voice for your (young or nonverbal) child. The team needs you to remain informed, to advocate for your child’s needs, and oftentimes to educate them about blindness or a visual impairment. Remain Informed If


Raising a Child Who Is Blind and...

I am the mother of three and my middle child, Eddie, is officially the "Special Needs Child." Here is my blog to share the joy and pain of having such a unique child.

  • Confidence, Optimism, and High Expectations Breed Faith
    by Emily Coleman on 3/7/2018

    I was recently thinking about the variety of professionals that worked with Eddie over the years. Being an educator myself and reflecting on my own work, I was trying to remember what made some people stand out more than others. My conclusion was that those who had confidence in their decisions, optimism for Eddie, and high expectations were the ones that I trusted the most. I realize that confidence can come with time, and not all of Eddie’s providers had years of experience. Many have had no experience working with a kid who was blind. They admitted when they didn’t know how to approach something or when they were just giving something a try. However, those that could admit ignorance with confidence and had some background knowledge justifying their choices, made a greater

  • Pros and Cons of Labeling Our Kids Who Are Blind or Visually Impaired
    by Emily Coleman on 2/14/2018

    When Eddie was first diagnosed with Optic Nerve Hypoplasia and given the label blind, it was something we could grasp. We didn’t know what his future would be like or what additional needs he’d have, but we knew that the word blind was now part of his identity. It seemed easily explained and a go-to excuse for many of his challenges. This proved to be dangerous. When Eddie was in second grade, I think, he received an updated functional vision evaluation, and his

  • Marriage and Raising a Child Who Is Blind
    by Emily Coleman on 1/31/2018

    James and I recently celebrated our 16th wedding anniversary, and my sister shared this photo of us smiling widely from the back of a limo. I look at that young couple and the life they envisioned in their mind... and laugh at how far it drifted from their original course. We were so young and so sure of our plans. When Eddie was born, three and a half years into our marriage, we learned that we don’t actually get to make all the decisions. This unpredictable course brought forth many challenges that not all relationships will survive. Those without these special kids may wonder


Other Blogs From the American Foundation for the Blind


AFB Blog

The American Foundation for the Blind is a national organization expanding possibilities for people with vision loss. AFB experts can be found on Capitol Hill ensuring children have the educational materials they need to learn; in board rooms working with technology companies to ensure that their products are fully accessible; and at conferences ensuring professionals who work with people with vision loss have access to the latest research and information. Through our online resources and information center we communicate directly with people experiencing vision loss, and their families, to give them the resources they need to maintain an independent lifestyle. Follow AFB's blog to learn more about our activities.


CareerConnect Blog

AFB CareerConnect® is an employment information resource developed by the American Foundation for the Blind for job seekers who are blind or visually impaired. The CareerConnect Blog focuses on employment issues for people who are blind or visually impaired, as well as sharing stories from mentors and other blind people who have found career success.


VisionAware Blog

Timely news and interviews relating to vision loss, including the latest updates in medical research.


Visually Impaired: Now What?

Formerly known as the "Peer Perspectives Blog," we have renamed the blog to reflect the purpose more accurately. The posts are written by our team of peer advisors, many of whom are professionals in the field who are blind or visually impaired. The blog features solutions for living with visual impairment resulting from eye conditions such as macular degeneration, glaucoma, diabetic retinopathy, and retinitis pigmentosa. It includes posts about living independently, getting around, low vision, technology, cooking, and helpful products.