Browse By Topic: Support Groups

Are You Planning to Go to College and Are You Visually Impaired?

Here is information about one of the Lighthouse Guild's telephone support groups. With our back-to-school focus, this support group is particularly relevant as its focus is helping visually impaired high school students with their transition into college. These telesupport groups are an excellent way to share and learn from each other. In September 2016, we will form a free telephone support group for high school juniors and seniors from around the country who are blind or visually impaired and are planning to go to


Launching Summer: Safety Tips for Children with Glaucoma or Cataracts

On the 4th of July, we in the United States celebrated Independence Day! This is the holiday that traditionally launches summer fun, summer sports, and family vacations. Under the warmth and brilliance of the summer sun, children enthusiastically participate in various sports such as swimming, softball, volley ball, soccer, running track and field events, horseback riding, roller skating, biking, and more. For parents who have children with glaucoma or congenital cataract, it is important to ensure that your child's eyes are protected. They should be fitted with correct eyewear such as


Children with Autism and Blindness: Misunderstood, Mislabeled, Misdiagnosed

We are happy to bring you information about another telephone support group available to you. By Dr. Susan Barron, PhD and Facilitator for the Lighthouse Guild Tele-support group for Parents of Children with Autism with Blindness. Misunderstood, mislabeled, misdiagnosed. How many times since the birth of your child has this been the judgment of others about your boy or girl's behavior, ability, or functioning? How hard and how often has it been your challenge to correct, explain, and advocate for a fair assessment of their abilities and limitations, so that you could obtain the needed services to enable them to live their best lives? And how tired and frustrated have you become in


Telephone Support Group for Cortical Visual Impairment in Children

Editor's note: We are pleased to welcome Judith Millman, LCSW, CVI telesupport group facilitator as a guest blogger today! Judith Millman CVIcortical vision impairment (often called cerebral vision impairment in Europe and the British Isles) is very much in the news these days. It is the predominant cause of vision loss in children in the US and Great Britain. There are many reasons for the startling number of kids with CVInot the least of which are the advances in neonatology in the past ten years. Many children born very


Telephone Support Group for Hermansky-Pudlak Syndrome

Today we are featuring another telephone support group provided by the Lighthouse Guild's NAPVI program. My name is Lilly Jackanin. I am the Group Facilitator for a Parent Tele-Support Group for parents of children afflicted with a condition known as Hermansky-Pudlak Syndrome. I would like to share information about our group that has been established to address this genetic disorder. This condition is highly prevalent on the island of Puerto Rico; however, it has been found in many other countries, including China, the UK, and numerous South American nations. What is HPS? Hermansky-Pudlak Syndrome (HPS) is a genetic metabolic disorder which causes albinism and can also cause visual impairment and a platelet dysfunction with prolonged bleeding. In


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